The new site for ME / CFS / FM / MCS Support Tropical North Queensland is slowly being relocated from Geocities to this address, as well as the we are still finishing various pages, please be 'patient'. We also wish to extend our thanks to X10 hosting for having free hosting available.
ME :: Myalgic Encephalomyelitis
CFS :: Chronic Fatigue Syndrome
FM :: Fibromyalgia
MCS :: Multiple Chemical Sensitivity
This from CDC's cfs basic facts - 'A number of illnesses have been described that have a similar spectrum of symptoms to CFS. These include fibromyalgia syndrome, myalgic encephalomyelitis, neurasthenia, multiple chemical sensitivity, and chronic mononucleosis. Although these illnesses may present with a primary symptom other than fatigue, chronic fatigue is commonly associated with all of them.' Fatigue, prolonged fatigue and chronic fatigue occur with most infectious(viral) illness, it may be commonly associated but is a result of the illness not pars pro toto.
Myalgic Encephalomyelitis, ME is not tiredness or extreme tiredness, but a severe flu-like illness that is usually precipitated by a virus, commonly glandular fever or Ross River fever in Queensland. Symptoms patients may suffer include headaches, memory and concentration problems, sore throat, muscle and joint pain, irritable bowel syndrome, disturbed sleep, exhaustion after minor effort, food allergies/ sensitivities and sensitivity to bright light and noise. ME is also known as Chronic Fatigue Syndrome - CFS -......more on CFS, Chronic Fatigue Immune Dysfunction Syndrome -CFIDS- (mainly in the USA) and Myalgic Encephalopathy (??)....more on ME
The correct terminology, Benign myalgic encephalomyelitis, ME has been classified in the International Classification of Diseases (ICD) as a neurological disorder since 1969, when it was included in ICD-8 at Volume I: code 323: page 158 and in Volume II (the CodeIndex) on page 173. (ICD-8 was approved in 1965 and published in 1969). Benign myalgic encephalomyelitis ME was included in ICD-9(1975) and is listed in Volume II on page 182. In ICD-10 (1992), benign myalgic encephalomyelitis ME continues to be listed under Disorders of the Nervous System at G93.3, with only post-viral fatigue syndrome as the heading.
Fibromyalgia (FM), (patients suffer similar symptoms to CFS) is an increasingly recognized chronic pain illness which is characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general fatigue and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle and hands, but any body part can be involved. Fibromyalgia patients experience a range of symptoms of varying intensities that may wax and wane over time....more
These illnesses may be severely disabling, with some patients being largely bed bound. While many studies report higher levels of certain physical abnormalities in ME/FM patients than in the healthy population, there currently isn't a validated diagnostic test. Diagnosis is made on the basis of symptom presentation
No one deserves to get ME or FM and no one should have to continue to endure it for weeks, months or years. Scientists and doctors are not certain of what causes ME/FM nor do they have a completely effective cure, despite they're being a vast array of potential treatments with some evidence for their use. Too many patients spend thousands of dollars on a fruitless quest for treatment. When something is found to help, it is often only slightly helpful, and costs a large sum of money.
It is very important that we have as many doctors and researchers looking at our illness, so that
- cheap, effective treatments can be found/proved, and then properly subsidised by Medicare where appropriate,
- all patients' current suffering be ended, and
- the initial development of ME/CFS/FM/MCS be prevented along with relapses amongst recovering patients.
Major projects into ME/CFS/FM have been undertaken at the University of Newcastle, University of Adelaide, and Greenslopes Hospital/University of Queensland. There are a number of smaller groups with some interest in our illness, particularly in Brisbane and Melbourne.
None of these projects has government funding, and all slowly limp along on mainly private donations, particularly from ME/CFS/FM Associations.
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